Kluang Ride & Run with Hope 2023

Kluang Ride & Run with Hope

Date: 30/09/2023
Time: 7am – 1 pm
VENUE: Impiana Square Matrix Sales Galleria, Kluang

Google Map Location: https://shorturl.at/biyGI

Last day to register: 15/08/2023

Registration Date:
15 Apr 2023- 15 Aug 2023 

Registration Fee:
Category 1 - Fellowship Ride (93km)

RM 150 (Early bird RM 140 until 15/5/23)

Category 2 - Santai Ride  (24km)

RM 70 (Early bird RM 60 until 15/5/23) for normal T-Shirt
RM 130 (Early bird RM 120 until 15/5/23) for Cycling Jersey

Category 3 - Run with Hope 7km

RM 70 (Early bird RM 60 until 15/5/23)

(You can opt to get our “HOPE” mascot at additional RM 70/each)

About HOPE the Mascot for Muscular Dystrophy.

Sloth, a mammal known for its slow movements due to its slow metabolism, is similar to many of our LSD patients who struggle with muscular dystrophy. As a way to raise awareness for rare diseases and support those living with these conditions, a sloth plushie named "HOPE" is available for purchase. Participants in this event can bring HOPE along for the ride or run and show their support for this important cause.

The President of the Malaysian Lysosomal Diseases Association (MLDA), Ir Lee Yee Seng, participated in the longest cycling event, covering 1,200 km in Paris-Brest-Paris (PBP) on August 18th, 2019. The main objective of PBP was to raise public, media, and government awareness about LSD diseases and highlight the urgent need for continuous funding support to prevent deaths resulting from delayed treatment for LSD disease patients in Malaysia. During this event, HOPE rode piggyback with Ir Lee, serving as a symbol of hope for those affected by LSD diseases.

Additionally, this year, in August 2023, Ir Lee Yee Seng plans to lead his Friend’s of Hope team once again in the Paris-Brest-Paris challenge for a fund-raising event. This event will serve as an opportunity to raise awareness about LSD diseases in Malaysia and to gather funding support for those who are affected by these conditions. By continuing to participate in events like these, we can work together to make a positive impact and improve the lives of LSD disease patients.

https://www.youtube.com/watch?v=igYbeySP5lk

• Cycling jersey (Cycling event for Category 1)
• T Shirt (Running event for Category 2&3)
• Water station / Refreshment at finishing line
• Finishing medal
• E cert
• Lucky Draw

*All the event kit will be courier to participants 2 weeks before the event.

Cycling Jersey:

Cycling and Running Tee:

International Gaucher Disease Day is an annual event that takes place on October 1st. The day is dedicated to raising awareness and understanding of Gaucher disease, which is a type from LSD family, a rare genetic disorder that affects the body's ability to break down certain types of fat.

Gaucher disease is caused by a deficiency of an enzyme called glucocerebrosidase, which leads to the buildup of harmful substances in the body's organs, tissues, and bone marrow. The disease can cause a wide range of symptoms, including anemia, bone pain, fatigue, liver and spleen enlargement, and neurological problems.

International Gaucher Disease Day was established to promote greater awareness of the disease and its impact on patients and their families, as well as to advocate for better treatments and support for those affected by the disease. The day is recognized around the world and is celebrated with various events and activities, including educational programs, fundraising events, and community outreach efforts.

The theme of International Gaucher Disease Day varies each year, but it always emphasizes the importance of raising awareness and supporting the Gaucher disease community. The day is an opportunity to come together and make a difference, and to show solidarity with those who are affected by this rare and challenging disease.

Be A Fund Raiser

Funds will be raised to assist individuals with rare disease from life threatening chronic diseases.

Each participants will be given a dedicated Ride For A Cause link via email upon successful registration. We welcome all amount of donation, but only donation above RM 50 will be given tax exemption receipts.

Category 1 - Fellowship Ride (93km)

Category 2 - Santai Ride (24km)

Category 3- Run with Hope 7KM

Kluang’s Ride & Run With Hope is organised by Malaysia Lysosomal Diseases Association and it is

1. Open to all who are above the age of 18 and currently residing in Malaysia.
2. No exchange or selling of event entry, the entitlement will be delivered to the mailing address provided in the registration form. In the event that there is a change of address, additional charges will incurred by the participant.
3. All Cycling jersey & T-shirts measurement are subject to 1-2cm tolerance.
4. All merchandises’ colour, design and material may be different from illustration and are subject to change without notice.
5. All Category 1,2 & 3 participants are required to assemble at Impiana Matrix Sales Galleria at 6:45am on 30^th  Sep 2023. Briefing and body warming session will be held at 6:55am and flag off at 7am.
6. The main organiser (MLDA) reserves the right to cancel the event due to unforeseen circumstances and all decisions made by MLDA is final.
7. Once participants registration is done, there will be no reimbursement/refund of the registration fee will be entertained.
8. By registering, you have impliedly given permission to allow us to add you into our  mailing list where we will be forwarding timely updates on everything relating to this event. You may unsubscribe from the mailing list at any time by emailing us at enquiry.mlda@gmail.com
9. Participants must be certified fit to participate in this event. MLDA will not be liable for any accident, injuries or mishap that happened in the participation of the event.
10. Participants agree to provide accurate, true, current and complete information about the Participants. Participants will be reached via e-mail or whatsapp message.
11. Any notice sent to the e-mail address registered with us shall be deemed received by the Participant.
12. MLDA has the right to suspend or terminate the Participant is suspected or have provided inaccurate, untrue, not current or incomplete information throughout the course of the event. Reimbursement/refund of any fee made will not be entertained.
13. If there is a returned of parcel during the delivery of parcel, a subsequent delivery can be made (upon request) at the expense of the participant.
14. Any address changes after registration will incur additional charges.
15. MLDA reserves the right to use any photographs (including those of Participant), motion pictures, recordings, or any other media records of the Event, for any legitimate purpose including commercial advertising and distribution of MLDA.
16. All the entitlement will be couriered to all participants 2 weeks before the event date.
17. MLDA has the rights to amend the Terms & Conditions at any time at its sole discretion without any prior notice.

Organiser: Malaysia Lysosomal Disease Association
Tel: 0196899620
Email: enquiry.mlda@gmail.com
Website: https://www.mymlda.com/
Facebook: https://www.facebook.com/ridewithhope
IG:  @ridewithhope
Tik Tok:  ridewithhope.my